Kahkiyaw wahkomâkanitik (All my relations) - IDEAS within the Brain-Heart Interconnectome initiative 2025
Brain-Heart Research for All: IDEAS in Data Governance
May 6, 2025 — 9 a.m. to 5 p.m.
IDEAS (Inclusion, Diversity, Equity, Accessibility, and Social Justice), Mitewekan (the spirit behind the heartbeat), and Open Science cross-cutting teams of the Brain-Heart Interconnectome (BHI), University of Ottawa, invite you to a workshop, IDEAS in Data Governance/Data Governance in IDEAS in Brain-Heart Research for all, as part of BHI’s annual event series, Kahkiyaw wahkomâkanitik (All my relations) | IDEAS within the BHI.
Details
About
BHI is an innovative interdisciplinary research initiative focused on expediting efforts to prevent, identify, treat, and provide care for brain-heart illnesses. Our collaboration brings together brain, heart and mental health researchers, people with lived experiences, health care professionals, community organizations, and partners. Notably, BHI’s IDEAS (Inclusion, Diversity, Equity, Accessibility and Social Justice) strategy in connection with other crosscutting themes, strives to contribute to BHI’s goal to generate a new transdisciplinary model in research excellence. IDEAS focuses on advancing community-centered, inclusive, equitable, and impactful brain-heart research that benefits all.
Event program description
Who? This 1-day workshop will bring together researchers, students, experts in Indigenous, Open Science and Rights-Based perspectives, community groups and people with lived experiences interested in and engaged in fair and equitable data governance in brain-heart research that benefits all.
What? Brain-heart conditions are studied separately despite common causes and risks. Equity-deserving groups (EDGs) and Indigenous Peoples remain excluded from research yet are among the most vulnerable. The goal of the workshop is to discuss, learn and identify opportunities and challenges to Indigenous populations and EDGs to have voice, ownership and control over identity-based health data in brain-heart research. The issues will be explored in the spirit of developing respectful, trusting, inclusive and safe relationships in data production and use. See Program Overview.
Date & time: May 6, 2025, 9 AM to 4:45 PM EST
- Attendance registration open from 8 AM to 8:50 AM EST
- Social and networking event from 4:45 PM to 6 PM EST
Where? Hybrid Event.
For in-person: Room 4007, Faculty of Social Sciences, University of Ottawa, 120 University Private, Ottawa, ON K1N 6N5.
Accessible with audio visual (AV) and American Sign Language (ASL) provision. Will have a safe and quiet space for those who want to rest.
Online: Zoom
Key Topics include:
- Evolving landscape of open science, its challenges, and its intersections with Indigenous data sovereignty, equity, and rights of people with lived experiences.
- Opportunities and challenges of urban Indigenous populations’ rights to and control over data collection and how data can be used.
- Ethical complexities of involving persons with lived experience in brain-heart research, bringing together diverse perspectives to challenge assumptions and inspire more inclusive, meaningful collaboration.
- Co-developing key take-aways on Indigenous Data Sovereignty, and equity-based data governance for brain-heart research.
To view last years event program click here.